Sam had clinic on Thursday. He finally finished his last extra cycle off accutane and I was anxious to find out how we would proceed.
The tumor board met a few days before his appointment and their consensus was that attempting to biopsy the remaining spots on his liver would be unnecessarily invasive. The biopsy that they took from there during his big surgery was negative, and his PET scan was negative, so they're guessing (our doc says she believes) that those spots are just old matured stuff and that we're okay just keeping an eye on it for now. She even said that she looked back and found a similar case, persistant liver lesions and everything, and that patient is still doing great years out from treatment.
No more accutane! (yippee!) He will continue to take bactrim for 3 more months and then he can stop that. Monthly clinic visits and scans every three months.
So here we go. We're out here without our safety net. Living life in 3 month increments.
He can start receiving his vaccinations again. He stopped receiving them at diagnosis and he'll have to repeat the ones he had up until then and catch up to where he should be.
We registered him for the Mother's Day Out preschool program at our church for this fall. He'll only be attending two days a week but I'm kind of freaking out about it.
He's growing more independent. He's getting brave. We're headed in the right direction, even if my stomach is all tied in knots over the uncertainty of it all.
I guess this really is the end of a chapter. The end of treatment for the foreseeable future. Holy cow, that just hit me. Praise God! And thank
you for your love, prayers, and support. I'm not naive... I know that we'll never really be "done" with cancer. The relapse rate is high. There will be lots of looking over my shoulder. But as of right now, in
this moment, we're done with the ugly stuff, and I'm happy about that.
Please continue to pray that all of the cancer in his little body is dead, dead,
dead. Gone and never to return. And this can go back to a happy little journal chronicling our lives, and not a "cancer blog." ♥♥♥